Term Paper on "African-American Woman Living With AIDS"

Term Paper 15 pages (5100 words) Sources: 1+

[EXCERPT] . . . .

African-American Women Living With AIDS

The year 1981 marked many historic events in the world but none as tragic as the discovery of 'Acquired Immunodeficiency Syndrome (AIDS). AIDS was first recognized as a disease when clinics in the larger cities in the United States such as New York, Los Angeles and San Francisco first saw young men who were homosexuals with Pnemocystis carinii pneumonia and Kaposi's sarcoma which was quite unusual for young adults who were not know to be immunosuppressed. The first report appeared in June 1981. This disease was first believed to be a homosexually transmitted disease but soon it was recognized that this disease was being transmitted among drug users as well. It wasn't long however, until it was understood that this disease was spreading among heterosexuals as well.

Prior to the identification of HIV as the virus that caused AIDS, those who tracked the epidemics course were dependent upon AIDS being reported when diagnosed to the public health departments, which became a requirements by all fifty U.S. states from the beginning of the epidemic however many states failed to report until the 1990s when the new multidrug regime of antiretroviral therapy became available. It is related that by the fall of 1982 100 cases had been reported which increased to 1,000 in February 1983, with another 1.000 reported 6 months later, and another 1,000 before the end of 1983 being reported. In 1988, 100,000 cases reported with another 100,00 being reported in 1990 and by October 1995 more than 500,000 cases of AIDS were reported in the United States.

The work of Lorraine Cole entitled: "From Cries and Whispers to Answers: Curbing th
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e Spread of HIV / AIDS among Black Women" states that in the United States that "Black women between the ages of 25 and 44 are 13 times more likely to die of the disease than their counterparts." (2005) in fact, according to Cole, HIV / AIDS is "among the top 4 causes of death for African-American women aged 20-54. In addition, more than half of the new cases of HIV infection in women over 50 are African-American. Black women are the fastest growing population of new cases, accounting for two-third (67%) of new AIDS cases among women." (Cole, 2005)

The work entitled: "AIDS Pandemic: African-American Women Can't Sleep on This" published in the Black Women's Health Imperative states that "Black women comprise nearly two-thirds of all women who are HIV positive according to the Centers for Disease Control." (Morris, 2004) While the African-American population comprises only 12% of the population in the United States: "more than half of the 40,000 new HIV infections diagnosed each year are African-Americans..." (Morris, 2004) in a 2007 article entitled: "HIV / AIDS and the Young African-American Woman" published by Advocates for Youth it is stated that African-Americans "now represent 36% of all reported AIDS cases and 43% of new AIDS cases..." (Advocate for Youth, 2007)

Of all AIDS cases reported among women, sixty percent of these cases are African-American women. Geraldine Brown reports in the work entitled: "HIV / AIDS among African-Americans and U.S. Women: Minority and Young Women" that a recent study by CDC of Job Corp entrants: "...ages 16 to 21, showed that, compared to their white counterparts, African-American women were seven times more likely to be infected with HIV." (Brown, 2004) Brown reports further that "in addition to experiencing historically higher rates of HIV infection, African-Americans continue to face challenges in accessing health care, prevention services and treatment." (2003) Health care providers generally focus on the physical manifestations related to AIDS and fail to address the emotional and psychological needs of the African-American woman with aids. It is critical that these needs be addressed as well as the physical problems of living with AIDS.

AFRICAN-AMERICAN WOMEN LIVING WITH AIDS

PART TWO

INFORMATION

Poverty and homelessness are often experienced by those who test HIV-positive. "For many women who are living on the street or in transient residences, are feeling overwhelmed by the needs of their children, or are battered within their relationships, illicit drugs may seem to be the best antidote." (a Clinical Guide to Care of Women with HIV / AIDS, 2005) the work of Gore-Felton and Dimarco entitled: "Brief Summary of Behavioral and Social Science Research Related to Women, Violence, Trauma and HIV / AIDS" states that many times "violence perpetrated against women is linked to risks for sexually transmitted infections, including HIV infection. Studies conducted in the U.S.A. shown that women in violent and abusive relationships are less likely to use condoms, more likely to incur abuse as a result of requesting condoms and more likely to contract sexually transmitted infections (STIs) than who have not been in violent relationships." (Gore-Felton and DiMarco, 2007)

Gore-Felton and DiMarco state that there is a growing body of evidence "that adults and adolescents who were sexually abused as children are more likely to engage in high risk activities that could increase their exposure to HIV." (2007) Furthermore, "mood disorders that result from abuse such as chronic depression and behaviors that include self-destructive tendencies, revictimization, and drug/alcohol abuse can increase one's vulnerability to HIV infections." (2007) Being diagnosed with a life-threatening illness "has been categorized as a traumatic stressor in the Diagnostic Statistical Manual 4th Edition (APA, 1994) Moreover, a growing body of research suggests that traumatic stress responses and even full-blown PTSD syndromes can ensue from the traumatic experience of being diagnosed with a life-threatening illness." (Gore-Felton and DiMarco, 2007) the problem with stress in those with HIV is connected to the response of stress upon the immune systems because "cumulative stress can disrupt this complex interactive system."(Gore-Felton and DiMarco, 2007) This may contribute to progression of the HIV disease. "Clinical evidence suggests that stressful live events predict more rapid HIV disease progression." (Gore-Felton and DiMarco, 2007)

In the course of the study is has been comprehended that "women experience HIV infection within the context of their various relationships." (a Guide to Clinical Care of Women with HIV / AIDS, 2005) Over 25% of HIV infected women have children, are three times as likely to have children as men, and are more than three times likely to live with their children. (Ibid; 2005 paraphrased) it is related that it has been characterized by clinical psychologists as to the "fundamental differences in the way women and men think about themselves with significant implications for practice. (Ibid, 2005; paraphrased) Women who have children in their household are more likely to delay medical care for themselves than are women without children or men. The following chart lists a demographic comparison of HIV-positive women and men.

HIV-Positive Women and Men

Women

Men

Level of Significance

African-American

Unemployed

Incomes <$5,000/yr

Without medical insurance

35-year-old

Source: A Guide to Clinical Care of Women with HIV / AIDS, 2005

The work entitled: " a Guide to Clinical Care of Women with HIV / AIDS" states that the emotional adjustment after finding out that one is HIV-positive "...including coping as an individual on a daily basis with the demands of having HIV and becoming an HIV patient, commonly follows by a natural course of progression through stages. For every 'shock' - a new diagnosis, a new symptom, the need to take more pills, more intrusions on daily routines - there is often the 'aftershock' of anger and avoidance, fear and denial." (2005) Furthermore this emotional adjustment "may vary by culture, race, and ethnicity, by level of social support and caretaking responsibilities, and by age and severity of physical and psychiatric symptoms..." (a Guide to Clinical Care of Women with HIV / AIDS, 2005) Appendix a provides the table showing the various milestones which are discussed in the Clinical Guide. The first stage is that of HIV Prevention in which the health care provider must be able to discuss high-risk behaviors with ease with the patient as well as discuss prevention measures. At this point the patient should be educated about HIV including the disease, transmission and negotiating safe behaviors. Empathy must be shown for the patient's denial, lack of interest, and high-risk behaviors. (Ibid)

The work of Archie-Booker, Cervero, and Langone entitled: "The Politics of Planning Culturally Relevant AIDS Prevention Education for African-American Women" reports a study conducted for the purposes of determining: (1) the extent to which the programs of a community-based AIDS education provider were culturally relevant for African-American women; and (2) What organizational and social factors in the program planning process influence whether these programs are culturally relevant. The study was of a qualitative nature, which studies an AIDS community services agency through conduction of interviews with staff and board members. Further participants-observations of three programs were utilized in order to analyze the programs and finally an analysis of the agency's documents was conducted. Findings of the study state that: "...except for a one-hour segment of one program, the overall AIDS education efforts were not culturally relevant for African-American women." (Archie-Booker, Cervero, and Langone, 1999)

There were three stated factors… READ MORE

Quoted Instructions for "African-American Woman Living With AIDS" Assignment:

we will pay a lot more for this order.!!!

This is for a human services course. This paper was going to have a case study of an African American woman living with AIDS. She had to stop due to illness and death in her family. Disregard the information pertaining to the case study.

Annotated Outline

HIV/AIDS and African American Women

I. Introduction

a. History

b. Statistics

c. African American women

d. Psychological trauma and Depression

This section will explore the historical presence of HIV/AIDS in the United States. The historical significance of this disease is important when looking statistics of the high rate of HIV/AIDS cases among African American women (Henry Kaiser Foundation, 2003, Fears, 2005, Minority Women*****s Health, 2006). The paper will focus on the psychological stress and high depression rates among African American women when dealing with this disease.

II. Information

a. Family background

b. Socio-economic background

c. Behaviors (psychological, sexual, etc.)

d. Coping mechanisms

e. Support systems

Dr. Gilbert and Wright collected a series of articles where African American women were interviewed concerning their lives with AIDS (Gilbert and Wright, 2002). The beginning of the questionnaire encompassed general demographic questions such as age, work status, income level, etc. The remaining questions addressed specifically what it is like to live with HIV/AIDS, how has her life changed with this disease and what mechanisms does she use to survive. Owens*****s research interviewed African American women and focused on family support and other support systems for women living with AIDS. This article will be used to further explain some of the issues around this target population (Owens, 2003). Roses*****s book, Longing to Tell: Black Women Talk about Sexuality and Intimacy (Rose, 1994), deals with the voices of African American women dealing with sexuality and intimacy. This book talks candidly about the subject and dispels myths about African American women that may have some bearing on how they look at their bodies.

III. Race, Class and Gender Implications

a. Historical overview

b. Health care stereotypes

c. Health care access

d. Socio-economic implications

Much of the literature argues that the disproportionately high numbers of new AIDS cases among African American women are those from low-income urban areas. This section will show these statistics and expound upon some of the reasons why this population deals with the prevalence of this disease at such high rates. Quality health care, culturally insensitive intervention programs and the lack of research on African American women with AIDS are all factors that will be explored in this section.

IV. Conclusion

a. Summarization of introduction

b. Discussion of case study participant as it relates to research

c. Further Implications *****“ health care professionals

This section will reiterate that the HIV/AIDS epidemic has been extremely difficult in the lives of African American women. They have the highest new cases of this disease than any other population. This section will use the case study participant*****s voice to understand what it is like to deal with this harsh disease. The psychological and emotional difficulties and resilience of this woman are strong indicators that society ostracizes those with this disease and family is very important.

This section will reveal that it is important to understand how individuals live with this disease. Much of the literature focuses on intervention and prevention programs (Huff and Kline, 1999). Archie-Booker, Cevero and Langone discuss the importance of these programs, but stress these programs need to be culturally relevant in order that African American women can benefit (Archie-booker, Cervero, and Langone, 1999). Hines and Graves*****s research sheds light on not only how much work has to be done, but the psychological state of many individuals concerning their health and wellness (Hines and Graves, 1998). It is equally important to assist those facing this disease on a psychological level. Their quality of life is important. One article, *****In Search of How People Change,***** was informative because it focused on changing addictive behaviors. After one has this disease, what behaviors must they change and/or improve upon to sustain their psychological well being (Prochaska, J., DiClemente, C., & Norcross, J., 1992). Health care professionals and other professionals dealing with this population should understand the importance of helping others live with a disease that carries very harsh stigmas. Dr. Cole, writing for The Black Women*****s Health Imperative (Cole, 2005) has strongly encouraged all black women to get involved in the politics of this disease. There clearly exist stigmas about the disease and even stronger negative stereotypes about the politics of Black women*****s lives.

Annotated Bibliography

Archie-Booker, D., Cervero, R. and Langone, C. (1999). The Politics of Planning Culturally Relevant AIDS Prevention Education For African American Women. Adult Education Quarterly, v. 49, 4, Summer, p. 163-175.

Statistics show that African American women are the fastest growing group infected with HIV. This study conducted by ***** of Education, Archie-Booker, Cervereo and Langone, attempted to understand the dynamics of planning and adult education program that addresses the needs of African American women*****s needs. They discovered that a large AIDS education provider neglected to address their needs or found the information culturally insensitive. They found that AIDS education provided relevant information toward target groups such as gay, lesbian and bisexual individuals. However, the only relevant material intended for African American women was a one hour program.

Cole, L. (2005). StoryBuilder From Cries and Whispers to Answers: Curbing the Spread of HIV/AIDS

among Black Women. Black Women*****s Health Imperative. www.blackwomenshealth.org.

President and CEO of the Black Women*****s Health Imperative, Dr. Cole, writes about the response or lack of response by Vice Presidential candidates in 2004 to the question posed about AIDS and African

American women. The response from Cheney confirmed for many that African American women were

not a priority for anyone*****s agenda. This article is an informative resource that evaluates politics and the

views held by many elected. This article provides the overall statistics of the increasing rates of

HIV/AIDS among African American women and discussed the importance of African American women

becoming a part of the research projects.

Favorite, Q. (1999). HIV/AIDS and the Young African American Woman. Advocates For Youth. www.advocatesforyouth.org. Washington, D.C.

This article caters specifically to young African American women. The language and expressions used

are meant to capture the attention of this specific group. The underlying message for young African

American women is that true self-love means that they make critical, informed decisions about their

bodies. The author, who belongs to Advocates For Youth, discusses communication, relationship

expectations, past and present drug use, contraceptive use and HIV testing. Favorite encourages African

American youth to speak up for themselves. Silence can be deadly.

Fears, D. (2005). U.S. HIV Cases Soaring Among Black Women. www.washingtonpost.com.

Washington Post *****, Fears, adds to the overwhelming and staggering statistics concerning African

American women and HIV. This article begins with a tragic personal account of an African American

woman dealing with this disease, but equally important, dealing with the psychological and emotional

issues surrounding how she acquired AIDS. This article uses one African American woman*****s experience

to emphasize the importance that social factors play in increasing rate of this disease. Social factors

such as inadequate health facilities in low economic neighborhoods, poor living conditions and lack of

honest communication.

Gilbert, D. & Wright, E. (Eds.)(2002). African American women and HIV/AIDS: Critical Responses. Praeger Publishers.

Editors, Dr. Gilbert and Dean of Cornell University, Wright, have compiled highly researched and thought provoking writings from various scholars giving voice to African American women and HIV/AIDS. The book describes this epidemic in the African American community as a crisis and portrays the voices of this particular group. In addition, the book offers intervention and prevention strategies that have been successful. These strategies have been under the supervision of social workers, feminists and social constructivist theories. Important for this project, this book provides a culturally appropriate analysis of this disease and places African American women and their voices at the forefront.

Henry Kaiser Foundation. (2003). Women and HIV/AIDS in the United States. www.kff.org. Washington, D.C.

This very informative article statistically maps out how this disease affects many ethnic groups and also

breaks the data down according to regions within the U.S. This article adds to the research articles previously read, but details the statistics more indepthly. Also, this article summarized various profiles of women with HIV/AIDS that impacted their contracting the disease such as race/ethnicity, age, regional variation, transmission, reproductive health, family responsibilities, access to and use of the health care system and health insurance. The information also delineates various discrepancies between men and women who have HIV/AIDS.

Hines, A. and Graves, K. (1998). AIDS Protection and Contraception among African American, Hispanic, and White Women. Health and Social Work; August, 23, 3, p. 186.

Hines, professor of social work at the San Jose State University and Graves, Alcohol Research group scientist, examined behaviors women had in relation to AIDS protection and contraception. The data showed that women from each ethnic group had not used a condom in their most recent sexual encounter. African American women were more likely to use condoms than any other group. Hispanic women, according to the data, were least likely to use contraceptives; thereby increasing their risk for AIDS and STDs. Interesting, White women reported contraceptives other than condoms which indicated their emphasis was on preventing pregnancy, rather than AIDS or STDs.

Huff, R. & Kline, M. (Eds.) (1999). Promoting Health in Multicultural Population: A handbook for Practioners. (1st ed.) ***** Publications, Inc.

***** Huff and Kline have put together a great resource concerning specific cultural groups and health. This book was particularly insightful due to the many cross-cultural assessments and interpretations in existence. Not only are assessments present, this book illustrates how one implements health promoting activities in cultural communities. Also, this book focuses on specific cultural communities, African Americans, Native Americans, etc., and provides case studies by which human service workers can fully understand the message(s).

McNair, L. (1997). Pervasive and Persistent Risks: Factors Influencing African American Women*****s HIV/AIDS Vulnerability. Journal of Black Psychology, Vol. 23, 2, May, p. 180-191.

McNair, Professor of psychology at the University of Georgia, conducted research that showed African American women engaged in risky behaviors that made them high risk for HIV infection. For example, unsafe sex practices are risky behavior s that increases their risk for infection. In addition, the women had other risky behaviors, such as smoking and drug and alcohol abuse. All of these behaviors result in poor health.

Minority Women*****s Health. (2006). HIV/AIDS. http://www.niaid.nih.gov/factsheets/womenhiv.htm

This article read more like a fact sheet and publication resource rather than an article. However, the information provided is invaluable due to the myriad of voices and experiences it encompasses. The publications listed in this article were difficult to find and proved to be different perspectives than other information on this subject.

Owens, S. (2003). African American Women Living with HIV/AIDS: Families as Sources of Support and of Stress. Social Work; April, 48, 2, p. 163.

Dr Owens, professor of social work at West Chester University, conducted research on eighteen African

American women living with HIV/AIDS. The research demonstrated that families were supportive by

providing assistance in times of crisis and the family bonds grew stronger. In addition, families were also

a source of stress by not listening to the needs of their sick family members and being in extreme denial

about the severity of their illness.

Prochaska, J., DiClemente, C., & Norcross, J. (1992). In search of how people change: Applications to addictive behaviors. American Psychologist, 47, 9, 1102-1114.

*****, Prochaska, DiClemente and Norcross pose an interesting question about how people change addictive behaviors. Much of the literature is inundated with prevention programs that seek to guide change in behaviors. This article addressed both how people change behaviors with and without treatment. The data gathered encompassed several theoretical models. The research concluded that ultimately change occurred when clients were ready for change. This article has implications for professionals developing programs for those with addictive behaviors. Programs are quite stringent and methodical. This research suggests that these programs take individuals where they are and work progressively.

Rose, T. (1994). Longing to Tell: Black Women Talk about Sexuality and Intimacy (1st ed.). Farrar, Straus and Giroux

Professor Rose attempts to answer why so many African American women have HIV/AIDS in this country. The book portrays the voices of approximately 19 African American women who share their experiences with talking about sex and intimacy. This subject, according to Rose, has been taboo in African American communities. Rose contends that given the long history of racial and gender stereotypes, there continues to exist a stigma about African American women openly discussing sex and intimacy for fear of being labeled or judged in negative ways. This book captures the focus of the project and gives voice to many women society relegates to the margins.

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